Tuesday, October 13, 2009

God's Promises

I have been struggling the past couple of weeks. I think it's a combination of things. Of course, we are still dreading the upcoming holidays. And I keep thinking about "one year ago today." It was this time last year that Webb started getting sick, and we started taking him to doctors every week to run test after test. No one (except me) suspected a brain tumor. He just wasn't exhibiting the "normal" symptoms. As the weather gets cooler and school starts, I am instantly taken back to that time in my mind, and it has opened fresh wounds. We are still so vulnerable. Then, the weekend before last, Bo (who is almost 4), started complaining about his feet hurting. Within minutes, his feet were very swollen and started to bruise. I instantly prayed for a sprained foot, and he and Zac raced off to the ER. I couldn't go back - not yet, and not for a sprain. Plus, it was Friday night (don't things like this always happen on the weekend when doctors' offices are closed??) and I had to stay behind with Whit. Once Zac got him to the emergency room, he called and said the nurses did not think it was a sprain. It was now happening to both feet, he could not walk and had strange, red "dots" traveling up his leg, and they were going to run some tests. I hung up the phone, and immediately threw up. "Tests" in that emergency room, oh no. I couldn't even take it. I went into panic mode, shaking and crying. I hit my knees and prayed so hard for God to heal my baby. Not to take another of my children. To let it all be ok. I was pretty hysterical, and by myself, but I kept praying and praying and praying. At some point, I heard a small, still voice telling me to "Get up. It's going to be ok." Needless to say, I never heard that voice when I was on my knees 9.5 months ago, praying the same prayers for Webb. So I got up. I was still worried, but I had a peace, and I had a feeling Bo was going to be fine. Zac called back and assured me the nurses and doctors were treating us as the "low man on the totem pole." While this used to be annoying, it is now music to my ears. When we brought Webb in on December 23, the ER was more crowded than I had ever seen it, yet we had nurses and doctors all over us. We were the "trauma" that day. This day, we were just another family in line. So I started feeling even better. After 6 hours and blood work, Bo was diagnosed with HSP. I had never heard of it either (http://kidney.niddk.nih.gov/kudiseases/pubs/HSP/). It's not the rarest illness, but they definitely don't see it everyday, and the symptoms are VERY scary. If you have kids, check out this website so you won't be in the same type of panic if one starts exhibiting these symptoms. Basically, Bo is going to be ok, and this was just one of those strange "kid things," as my pediatrician told me. Of course, why it happened to our family, when we are already so fragile - I don't know. In the depths of my distress that night, I screamed to God, "We've had enough!!" It was the first time I have been angry at Him this year. I know that's hard to believe, but it was. I was at the end of my rope. Enough is enough. I have experienced a set back. Another reminder that life is so fragile, that I have no guarantees. Yet in that darkness, I also heard God's voice, telling me I'm going to be ok. And I believe it, but it's still scary. This life is no longer all happiness and dreams for me - it is instead rooted in the grim reality that the worst does happen. Your children can die. More than one. Cancer strikes out of nowhere, accidents happen. I always "knew" it, but now I am living it.
I am doing a Bible study right now on the book of Romans. Faithful followers know I have relied on passages from Romans throughout this year. It is a book that gives grievers hope. And as I read in Romans last night, I was reminded again that God does not promise life will be good just because we are good, and He does not promise we will live a life without hardship and pain. But He does promise to use that pain and those struggles to build character, to make us stronger. He also promises eternal life if you put your belief in Jesus Christ. And He promises to keep His promises. God has never broken a promise. Not to me, not to anyone. When he gave me Webb, He didn't promise to let me keep him my entire life, and that is a hard thing to swallow. But I know God will be glorified in my story, some how, some way. I know I will spend eternity with Webb, in a place where brain tumors don't exist. I am standing on the promises of God. And in a world where everything else seems shaky and unsure, that is a pretty great place to be.

5 comments:

  1. One of the young couples in our church just found out this past week that their daughter, Julia, also has HSP! We had never heard of it before. You can read their story at: http://theekelands.blogspot.com/. They have been my check-in workers in the nursery and the doctor recommended that Julia not attend nursery for awhile, so I am looking to find new workers. We will miss Julia so much! Our Lord will carry you through this most difficult circumstance. He asks us to pour out our troubles before Him and you have. And in His still, quiet voice, He has given you assurance. I will be praying!

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  2. Hi, I'm Jennalee, Julia's mom (the little girl that Debby is talking about above). I would love to get to know you and pray for you and your family as well as learn a little more about HSP. If you feel comfortable my e-mail is jenjerekeland@sbcglobal.net Through reading your blog...what a precious family you have! Blessings to you!

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  3. oh, Ashley,
    Once again,I can relate to that moment of panic you had about another illness, mercy had a fever while back and it literally took me down down to my knees begging as well and screaming at the Lord. How thankful we can be that our weak/fragile selves can be delivered into a peaceful state as like you were able to hear him whisper his still small voice. I think you heard it so well because this trial has made you, grown you, and you are seeking so you hear in a new way, so that part of it is exciting. I have never heard of this HSP either. I have read many a mommy's grieving experiences and some seem to be trying to get through it own their own and some are desperate for Jesus and their tears is in a sense becoming their "meat" making them stronger as they cry out to God and seek His truth and they are finding treasures and promises.....I see that in you!! Our hurt will always be in this life, but as we both seek Him, it is sort of a cushion, its the Holy Spirit!! Keep in the Word and like the small voice "it will be alright!!"

    Praying for you daily....

    Cindy

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  4. Ashley, I came across this verse today and you were the first person that popped into my mind. You and your family continue to be in my prayers...

    The LORD is close to the brokenhearted and saves those who are crushed in spirit." Psalm 34:18

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  5. I hope you find this as interesting and comforting as I did. I was in California earlier in the week for the 2009 Women's Conference and had the privledge of hearing Maria Shriver speak of grief and hold a panel discussion with other mom's who had lost children. Go here to watch and move to 1:21:55 to hear her talk and then watch the panel...I thought of you. Susan Amabile http://www.californiawomen.org/the-womens-conference-2009/lunch

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