"Little" Losses

Fourteen months ago, I said goodbye to one of the loves of my life, and since then, I've never been the same. Recently I looked at Bo and Whit and realized our lives would be completely different if Webb was still alive. They would be different, their relationship with each other would be different, their relationships with us would be different...and for some reason, that makes me so sad. I can no longer easily picture what our lives would be like if Webb was still with us, and the realization of that loss is huge. You see, when you lose someone, their life itself is a giant loss, but the losses that flow from their death, the ones that pop up months, even years later, are the ones that take you by surprise and keep you constantly in a state of evolving grief. It's part of why there are some losses that are impossible to "get over." I experience these "little losses" all the time, which are still part of the giant loss but need their own mini grief session all the same. For instance, Bo and Whit have been sharing Bo's room for several months. Recently, I decided it made more sense for them to move back to the twins' room since it is twice the size. We had not taken down Webb's crib yet. It still sat in the exact same place it did the last night I laid him in it, December 22, 2008, with his name hanging above it. I could not even THINK about taking that crib down the first year. But once I decided to move the boys into that room, I was able to do it. I was sad, but not hysterical because I did it my way, in my own time. It was a loss, but one I had prepared for, so handling it was something I could do without breaking down. The rest of my life I will have to deal with these "little losses" that aren't so little.

Many people have asked me how we have been able to maintain our strength, our sanity, our faith and our marriage in the midst of such unspeakable grief. I have a lot of answers, but "the answer," of course, is by the Grace of God. Something happens when you are faced with the worst of all, something I have a hard time putting into words. "The peace that transcends all understanding," is the closest I can come to describing what Jesus does for those who are broken, but I heard those words a million times before I felt them and didn't appreciate them until I experienced them. It's a double -edged sword, because I would not wish this type of experience on one person, but in a way, I feel incredibly lucky to have heard and felt God in a way that I never knew existed.

Part of a song that captures some of what I'm talking about is copied below. It is called "Held" by Natalie Grant, and I must have listened to it 100 times a day right after Webb died and still listen to it every once in a while. For me, it is such a great description of the way I felt when Webb was ripped from my life - "held." After Webb died, God didn't sweep into my life in a big way and start telling me I was going to be ok and help me in and out of bed. No, it was much more subtle than that. Looking back, He was there the entire time, but sort of off to the side, giving us His gracious, quiet presence and His small, still voice. I remember feeling warm, comforted and peaceful - "held" is an almost perfect way to describe it, similar to the way I imagine my children feel when they are in my arms - safe and secure no matter what may come....

Held

by Natalie Grant

Two months is too little
They let him go
They had no sudden healing
To think that providence
Would take a child from his mother
While she prays, is appalling
Who told us we'd be rescued
What has changed and
Why should we be saved from nightmares
We're asking why this happens to us
Who have died to live, it's unfair

This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive
This is what it is to be loved and to know
That the promise was when everything fell
We'd be held

This hand is bitterness
We want to taste it and
Let the hatred numb our sorrows
The wise hand opens slowly
To lilies of the valley and tomorrow.....

Picture of my soul....

For 13 months I have been unable to look at pictures of Webb I wasn't used to seeing everyday. Of course, I have several in frames in my house and in my office and in my parents' house that I see all the time. But then there is also this giant box of all these pictures I have not looked at in so long. Pictures of the twins' birth, right up through a week before Webb died. I finally opened the box. I looked at hundreds of pictures of my boys and remembered those days. I thought I wouldn't be able to tell the difference between Webb and Whit because they were SO identical - especially when they were younger. But I could. I could tell which one was Whit and which one was Webb in every single picture. And it filled my heart to see that baby, in a way I couldn't even describe. I had been avoiding looking at the pictures because I was afraid I would feel such pain because those days are long gone. And there were little stabs to the heart as I looked through the pictures. But I mostly felt peace. And love. And looking at those cheeks, those eyes, that dimple, that smile, reminded me how happy he was. Right until the end. I was able to tell myself he was not in pain and believe it. I looked at pictures of myself and in ways I was barely recognizable. Did my face used to be that round? Did my eyes really sparkle like that? Was my brow smooth then, not furrowed? I have changed, inside and out. I am not that girl anymore. And although that makes me sad, I know that I have grown, and I know that I have an insight I never had before, and although I would trade all that for Webb, I cannot, so I must accept this new reality that is my life. I closed the box and cried. Cried for me, for Webb, for Zac, Bo and Whit. I wondered again why we are on this path and why the roads are not straight for us. I wondered why, 13 months later, we still have so many challenges, so many obstacles to face. I do not know the answers. I do not know why some people move through life without one bad thing ever happening to them and why others cannot catch a break. But I don't think God causes those circumstances anymore. In fact, I know He doesn't. God didn't promise us that being good meant life would be good. But He does promise to be there when the bad comes. And He is. He is here. But to quote Mother Theresa: "I know God will not give me anything I can't handle. I just wish that He didn't trust me so much."

My hands are small I know....

I have had a hard time posting lately. And it's not because there is a lack of things on my mind, or a lack of things to say. In fact, there is so much on my mind, so many things I am thinking and processing, I do not know how I would be able to write them all down. I have been dealing with some medical issues (nothing life or death), and it has again put us back in the "dealing with stuff" mode. And I am tired of dealing. I am worn out, exhausted and all-around over it. I have taken to writing things down I am thankful for everyday to remind myself I am blessed, despite the mounds and mounds of horrific events we have been through. One of these major things I am thankful for is the health of Bo and Whit. Thanks to all for your prayers for Bo's HSP. His last urinalysis was negative for protein, and we are now 3.5 months past the HSP diagnosis which is a good indication his kidneys have been unaffected by the disease. We will continue to monitor it and continue to pray his body suffers no more effects of the HSP. Whit has also been healthy this season, after a bout of croup and double ear infections. Once you lose a child to an illness, healthy times take on a whole new meaning. I never take my children's health for granted. In fact, if nothing else goes right, but they are healthy and safe, I will be happy despite any other challenges being hurled our way. I do have some fears I have been struggling with besides my children's health....I am in such a strange stage of my grief. While Webb's death still seems so current and present for me, it is no longer at the top of everyone else's list. I know there are many who probably think we are "over it," or at least "moved on" as it has been 13 months. However, nothing could be further from the truth. As those who have loved and lost know, we will never be over it or move on. We have shifted into a different reality, but let me tell you, that reality still sucks. We are forever changed by losing our baby. Out faith has been solidified, validated and strengthened. We are soldiers of the cross, fighting this fight with Christ on our side, but the days and nights without sweet Webb are just as unbearable as they always have been. I know God is here and hears our cries. I know He is supporting us, holding us and pushing us when we feel like we can't go on. He is a very real presence in the midst of unspeakable tragedy. We will not turn from Him. The devil would like nothing more than for us to throw up our hands and say, "That's it! I can't take anymore! We are cursed!" I will not give him that satisfaction. We will march through these trials with the Lord on our side, by our side. And in the end, when I finally hear, "Well done good and faithful one," I will know I have led the life I was called to lead. I am one person, with a small voice, but I will sing to the Lord, because He has been good to me.....

A Long December and there's Reason to Believe Maybe this Year will be Better than the Last....

We lived through December 26, 2009. How was it? Well, better than December 26, 2008, but still very, very difficult. How is it possible that Webb has been gone a year? One year ago today, we were attending the funeral of my almost 19 month old baby. Zac and I kissed his casket and then sat in a packed church while our friends and family sat shocked, sad, scared and unbelieving behind us. I remember it well - too well. I remember what I was thinking, what I was wearing, the outfit we picked out for Webb - all of it. After that, I remember little from the next several months. Thank God for that. This year, we did not know how to celebrate Christmas, but with a 4 and 2 and a half year old, we didn't have a choice. We knew staying here would make it almost impossible to give our children the "Merry" Christmas they deserve. Although they know Webb died, they have no idea it happened on December 26, or even what those dates mean. So instead, we packed up on December 22 and went to Disneyworld until last night. It was the best decision we have ever made. It is hard to be depressed when you are watching your children have that much fun. And we each took time out of our day on December 26 to honor Webb. Two of my best friends surprised us by making each Zac and me a spa appointment that day, which gave us each time to be alone, relax, reflect and think about Webb. Luckily, my "spa therapist" asked no questions when I cried throughout the pedicure. I wasn't really sobbing - just kind of leaking. Tears were coming fast and furious. It was a nice release. And to be honest, it was nice spending those days with just Zac, Bo and Whit. We escaped all family drama associated with Christmas, which was actually refreshing. And I knew in my heart no one except us would truly be able to honor December 26 and the emotions of that day. We would not have been able to pretend like it wasn't happening, yet we would not have wanted to cry all day in the presence of others. For us, Christmas means something different now, and being around people that don't understand that would have been tough. We did it our way, and because we know ourselves well, that is what worked. We returned home last night, exhausted and happy for the joy we gave Bo and Whit. They thought today was Christmas and had fun setting out cookies for Santa last night and playing with all their toys this morning. For all the dread and leading up to this time of year, I am proud of how it turned out. Nothing will erase the sadness associated with this time, but we have to make sure our children still have Christmas. What I am feeling truly blessed for is the prayers that carried us through a difficult month, week and day. I cannot think of one person in my life that is important to me who did not reach out with a phone call, text, email, Facebook message or card in the days leading up to December 26. That is incredible. You have no idea how much gestures like that mean to me. It reminded me of why I have been able to survive this horrific year - this support system around me is the most incredible gift I could have ever asked for. Thank you for your prayers, for loving me and my family and for helping me during this most difficult time.

Scattered thoughts from a broken heart....

We took our children to see Santa last Friday and Bo took one look at him and turned to us and said with sad eyes, "I wish Webbie was here to sit on Santa's lap like last year." Zac and I both started crying. "So do I," was all I could say. It seems so strange he is gone. Every day that inches closer to "the" day, it seems a little less real and a little more real, all at the same time. We are sad. We are aching. Bo is asking questions, more complicated questions every day. I feel like I am sort of hovering above and looking in on our lives. Living life completely right now is too impossible. Christmas isn't really Christmas. The missing him is too big. One year ago today, our world was perfect. We were innocent. Then, in the span of five words and 10 seconds, everything changed: "Webber has a brain tumor." I'll never forget the room we were in, the faces I saw, the nurse who kept looking at the floor so she didn't have to see the panic in our eyes, the tiny scream that came from my husband and the images that ran through my mind of my children laughing the night before. The horror comes flooding back. I'll never forget. The wall of grief, and pain and trauma is so big it will never come down completely. One year has come and gone, and the only thing that has changed is the feeling of being overwhelmed by the grief. The sheer panic of facing the day has subsided, but what we are left with is just as impossible. Not overwhelmed, just sad. Unbelieving. A little confused. A little lost. And a little found. I can't even comprehend the grace that has come from His presence alone. For that, I am blessed. Blessed to have known Webb for 19 months. Blessed to know he is with our great God. Blessed to have the promise of life eternal with him. All because of His amazing grace.

Be still and know that I am God. Psalm 46:10

Yet this I call to mind and therefore I have hope: Because of the Lord's great love we are not consumed, for his compassions never fail. Lamentations 3: 21-22.

The Lord gives strength to His people; the Lord blesses His people with peace. Psalm 29:11

We are hanging in there, leaning on each other and finding strength through our faith and our precious children. Life goes on and time goes by, one year will turn into many, and we will always know we were forever changed on December 26, 2008. Forever changed, but not defeated. We have lived, because He lives. We will approach 2010 with our heads held high, knowing we can endure anything, everything, because we have lived through the worst. We ask for continued prayers and support during this most difficult season, and the ones to follow. God bless you and your families and thank you for loving our family.

And all the roads we have to walk are winding...

I don't have much to say as this Christmas season and anniversary of Webb's death approaches and our year of "firsts" winds down, except that we are in survival mode, and covet prayers, and are doing our best to put one foot in front of the other and make it through for the sake of our children. We managed to put up a tree, but looking at the ornaments made me sick, so we only got about half way through the box. That's enough for now. I did not send Christmas cards out this year. I couldn't imagine one that didn't include Webb - the "someone missing" would have been all I could see. Christmas music is not playing on our radio, and we will not be having a traditional celebration this year. It just seems like the best way, since we are not feeling festive. I am looking toward December 26 with dread. Somehow, I thought I'd feel different after a whole year, but I don't really know if I do. I am starting to relive memories of December 2008 I had pushed way down. I think I never wanted those memories to resurface, but they have and it has been painful. I guess the old adages "time helps" and "the first year is the worst" are probably true - but I cannot imagine I'll wake up January 1, 2010 and feel much different. It's still a long, winding road ahead. And while we've come far, we still have miles to go. This year, I am thinking about Christmas in the truest, most basic way possible. I am so thankful for that night in Bethlehem all those years ago, when God sent Jesus to save us. 2008 years later, almost to the day, He took Webb into His loving arms. Without Christ, I would not have the promise of eternity with my son, which would be the ultimate knife through my heart and soul. Instead, I have heaven with Webb to look forward to. And if that is all I ever associate Christmas with again, so be it. Trees, parties, dinner, presents, Santa and all the rest really mean nothing in the grand scheme of things. And in a year where celebrating seems impossible, knowing the true reason for the season means Christmas will not be lost on us at all. But it is still hard facing these dates which are associated with the worst moments of our lives. I am not quite sure yet how I feel about that.

Thanks....

Giving thanks. Surprisingly (or not), it came easier than I expected. I woke up on Thanksgiving and looked at Zac, Bo and Whit, and I felt love, peace, strength. Of course, throughout the day, I had my visions of Webb, and I could almost see him standing, playing, laughing with his brothers. It seems no matter how our family is sitting, standing or moving, I always see a giant hole where Webb is supposed to be. I keep thinking about this year of pain and what it has meant. All the events that have given me a new perspective run through my mind. Enduring pain is horrible; grieving is unbearable, especially when you're grieving your child. But it seems little (and huge) life lessons have come out of each. Having the miscarriage, dealing with strange (and common) childhood illnesses and struggling with relationships: all of these things have taught me about the fragility of life, the need to seek strength from Christ and the importance of facing my fears head on. Losing Webb is too big to break down so easily, but I am starting to see how the pain, the tears and the heartache are shifting me, molding me and carrying me into what I will become. Am I ready to give thanks for that? No, certainly not. Not now, and I cannot imagine ever. But it seems all of the pain that came with this year has made me see what I am thankful for in a different way. And I am thankful for so, so much. I am thankful for my parents who raised me to be strong and stand on two feet - I bet they never knew how much I would have to draw from the strength they gave me. I am thankful for my husband who- like no other- knows how I feel and without a word can tell me he understands, he knows and we will be ok. I am thankful for friends who did not give up when things got tough. These friends are here on November 28, 2009 as much as they were there on December 23, 2008. Every phone call, email, card, text, visit, dinner, smile and hug is forever etched in my heart. Angels on earth. I am thankful for Bo and Whit, my two creative, silly, sensitive, loving boys who fill me up, pick me up and remind me why we must go on. I am thankful they saved our lives. And I am thankful they have no idea they saved our lives. I am thankful for Webb and the short 19 months I got to hold him, love him and raise him. I am thankful I knew his sweet soul and I would not trade those 19 months. Not even if I knew the pain that losing him would bring. I am a better, stronger person for being his mother, and my love for him is endless. Finally, I am most thankful for my God, my savior Jesus Christ. He has literally carried me through these horrific months. He has rocked me, guided me, pulled me out of the mud and mire and set my feet on solid ground. Without Him, there would be no children to love, no friends to call, no reason to live. He is the reason for everything, and I am learning to rely on him as my sole source of strength. He is getting us through, and we are truly thankful for it. This year, Thanksgiving was like none before. But somehow, that wasn't entirely a bad thing.